WoPo – And the Poetry Reboot (by sarah)

Many years ago I set up a poetry writing group for a group of student writers who I met at NaNoWriMo (National Novel Writing Month) and so of course this manifested as a month of writing poetry and the first year there was a pledge sign up and a private forum and the website with prompts and all the social media and so on. I had guest poets and so on and it was great but a lot of work. I tried to pay others to do some of the work whilst I was pregnant with Mary but it just didn't really happen and so I scaled the event back. Then the physical group all finished university or drifted away and others couldn't do feb so I started doing it as a more year round thing and dropped the specific URL and tried to go with just World Poetry rather than a month writing drive.

But...

Turned out some people like the month drive thing so its ended up as a bit of a miss match and half forgotten project which is a shame as when I went through the archive for its tenth anniversary I realised there was a lot of writing prompts and exercises and lots and lots of awesome poets stories and of course many of the poems written from the prompts have indeed gone on to be published.

Last year the prompts when up on Instagram mainly because I was dealing with hospitals and things and it just wasn't going to happen any other way. But this means I need to think about where this is all going? I feel February just is the main thing but other bits through out the year works fine - I might even manage to do some physical meet ups this year. This has already prodded me into sorting out a little poetry outing last week at The Folk Gloucester to be inspired by Cedric Titcombes work - it is amazing and I wish I had all the money to buy some of those images - each one is a liminal space in and of itself - but that is another story for another time!

Basically I can not run the sort of this I did in the first year by myself - it just isn't possible but covid did impact us as a family in drastic ways plus obviously the bereavements so the site is a mess, stuff is spread over multiple platforms and so on.

So there will be prompts and I will share them - they may not be exactly daily (I do not want a repeat of the year the scheduler did not work) but I will try and I am also trying to get myself back out to some poetry events. I want to take part in the zooms and things but the clipping and things is quiet exhausting so like with the physical events I am reserving my energy for the ones that have asked me to perform - it is purely an energy thing - I would love to attend so much stuff but I just can't.

And that brings me onto the fact that I am just having to take it all slowly and build myself and the projects back up slowly - I suck at this aspect as I want to do everything NOW!

In summary - if anyone does want to take part here are the links - there is loads of archive material so you don't have to wait and if you meed or want the prompts in another format please just say ie there are little booklets for the older prompts and so on.

insta

website

Facebook - there is also a group but it is reserved for people I know

Twitter it was under TheMonsterBlogs but twitter has broken many things including the tools that let me switch accounts easily so if anything goes up it will be just under my own account Saffy.

Lastly I feel I have failed slightly at the World part of the WoPo - I do have participants from all over the world but I had wanted lots of articles on poems from other languages and cultures etc and that just never really happened even when I had a budget to pay people to write articles - so I don't know weather I should be changing the name or not. Also on that note a lot of the prompts get used by writers for stories and things too which might be a stretch of the poetry bit but what do people think?

Luna and Their Wondering Stars (by sarah)

There is a lot of wonderful astronomy type stuff going on at the moment and sometimes I find myself able to capture just a glimpse of the worlds and burning suns in our sky. At the moment there is a visible comet - my eyesight is pretty bad these days but I am still hunting for it as I did with Neowise a few years ago - this time I do not have my mum to drag out in the car with the kids with thermoses of hot chocolate and lots of moaning and excitement when a shooting star is seen or a planet spotted. But I do have a Mary and Mary likes to point out "weird" extra glowey stars and wonder on what they might be and they have been many things - more things than I thought they would be. And so we have this picture taken on the dance run of a new moon growing from a slither so so thin and delicate with planet in tow - Venus and Saturn - at least I think that's Saturn much smaller and fainter there.

The moon always has held a fascination for me and of course it is for many cultures that this new moon - this moment is the New Year and with everything that has been going on and the illness over Christmas that feels right. Besides I like the idea of a rabbit in the moon - I know I've mentioned it before but I had a little outfit when I was a kid with embroidered bunnies on it and this idea kind of stuck in my head. Plus our bunny Angel is named after Mum and I am scrabbling for so much that was or should have been and I am becoming I think a re-Me or a new-Me or at least an adapted me at the moment.

This seem so cyclic as stuff from years past rears its head and says you need to use this skill or investigate this thing you knew or just look at the world in the wonder you once had. I found the MoonMania embroidery and have a wood to look at nature and rocks in and I found needle ice on my own drive way - a thing I've known about but never seen. I've been photographing mushrooms and taking part in Wassails and playing music. I have been finding the sky and the forest floor to be filled with things I know of but have been missing, I see landscapes and world and stories that want to flow but I am so very tired and broken - as Jean used to say "need glue" or maybe some gold to stick these fragments together again. I don't know. I don't even particularly care but I took some photos of the moon and of stars over the River Severn and found siderite and drew things for my kids.

Sometimes I dream of adventures in those skies and I wonder were exactly the wonderers are wondering off to but then I know I could just look it up or plot it out myself but is that any different to my walks were I find so many things to see and investigate.

Last year we failed to get the telescope out at all - this is an amazing fact to me but something I hope to counter this year.

Fire Balls, Space Junk and Ring Lightning (by sarah)

Wednesday on our way home from the kids drama and singing lessons we saw a weird orange light in the sky that seemed to flare but by the time we had processed it and mentioned it to each other it was just another dimming light that could have been a floating lantern or a satellite or plan wing tip - having just come back from a conference on the paranormal and tricks my mind churned with the possibilities. At first I thought it might be a satellite dancing across the sky or a launch I had lost track off - after all something was due to happen with Space Link wasn't it?

I struggle these days to keep up with launches and fly bys and some are more noticeable that others - also due to the visual distortions caused by a mix of graves disease, damage from head injury ie a blind spot my mind tries to correct for and sometimes wrong colour due to blood sugar levels mucking up my lenses - I am always suspicious of what I see. But I wasn't the only one and we talked about Day of the Triffids and I thought on how it didn't seem right for the fly bys or launches I have seen. Nor if I am honest did it look like any meteor shower I had seen including one with a confirmed landing.

Now as a family weird stuff does happen to us - the probabilities of our life are so extreme they have to be real life because you could not get away with this shiiiite in fiction and sky phenomena is one of the things we seem to be proune too. We have seen clouds with fluorescent edges, cold fire flickering in strange colours(st elmos fire), a green flash from the sunrise, sundogs guarding the sun, moon bows, transits of planets in tear drop shapes across the sun, eclipses, green skies, sand storms in spout form, strange lightning, shooting stars.

I on my own have seen, felt and heard a thunder bolt crash in a flash to the ground - the sound of it was deafening as we sat in our car by the traffic lights - a ring of lightning that arrived in Grey Towers at the end of Hornchurch town centre when I was very small - it was amazing and painful and very too close - I am not sure what the out come would have been if we hadn't been sitting in the car with its rubber insulated feet.

Alaric on the other hand has witnessed not 1 but 2 fatal air craft accidents, on of which they then spent their time administering first aid to the crowd (to be fair they have attended a lot of air shows and been a first aider/emergency response of some sort at many events).

We've seen strange fogs, and rare cloud formations, inverted rainbows, but not the aurora - I thought the translucent clouds we saw were this but they did not shift and move and are another meteorological phenomena called Iridescence or Irisidation. Some I thought could not be real like the dawn flash - but they are along with scientific explanations.

I wonder if it is just because we are outside a lot or because we look to the sky or because the improbable is still probable if there are billions of people living their lives on an increasingly chaotic system of a planet.

So I promised the kids I'd see if there was anything on meteor watch about the strange lights in the sky - and promptly forgot as not only did it remind me of Day of the Triffids but it reminded me of Smallsville - a Superman spin off taking us through the adventures of a town decimated by a meteorite strike - and I ended up knitting and watching that instead. It didn't even seem that strange if I am honest - oh another UFO - I wondered if a satellite had fallen, burning before it could crash into the surface of our world but no biggy really.

The next morning however I woke up regretting that I had failed to capture it on my phone - I had tried but it was over and we were weaving around small roads and I just took too long - now I wanted to know what it was... as a personal set completion - space junk was preferable - from a studying and travelling the cosmos point of view a meteorite would be preferable on many many levels including just not making our own sky a no go travel zone because we've created so much space pollution ie debris.

So what do we know about this fire ball? It was seen most in Scotland and Northern Ireland but others including here in the SW of England saw it, some of which are our friends who commented on my Facebook post - also if you say you saw one mysterious sky object people will tell you all their UFO stories - I like this it is interesting - if you want to share go ahead and leave a comment <3

When I initially checked it was thought to most likely be debris from something and that was being checked out - but later in the day it seemed to have become the meteor scenario - so a rock from space that exploded in our atmosphere from uneven heating caused by the friction of falling through our atmosphere and the different materials, cracks and possible things like ice evaporating to super heated steam very quickly (this process can cause serious explosions as can many gas or liquid reservoirs within things like asteroids - also there are classification systems for all of this which I am semi ignoring to use words more widely know).

WE didn't even really see a fire ball - just a flare at most and there seems to be two times floating around for the even which might be an issue with daylight saving or maybe there are two events which wouldn't be particularly surprising as natural or human origin space debris tends to scatter on its way down especially if there are explosions! Or of course people are people and they make mistakes!

I really thought it was going to be one of the star link satellites if I am honest but according to the UK Meteor Network and other such groups and bodies of experts it looks like it was a meteor and that it is likely to have landed in the sea. There is more sea than land on Earth so that isn't really surprising and I recall several lectures on the finding and not finding of meteorites and the reasons behind this - the Earth is still "accreting" were are hoovering up space dust and being bombarded with rocks and narrowly missing the big chunks of other planets that are no longer planets or never quiet formed into planets in the first place.

Of course I am obsessed with space rocks so could bore you for hours with them - I am currently trying to set things up so that I can collect micro meteorites as such projects like Project Star Dust have managed - I even rope in groups of scouts - mainly we stare at bits of sand blown in from the deserts, or rocks thrown off the road but occasionally something unusual turns up.

(I found that this post had not gone live for some reason so it was back blogged to the date of writing)

Headless, Heedless, Reckless and Restless (by sarah)

I feel a burning restless desire to just do something but have no energy and the thought of choosing anything is hard at the moment. I feel like I am wondering aimlessly - like my head has been cut off. I am just me but who is me and what do I do now? The last few years have just been absorbed with caring and doing and before that just surviving - it has been a rough run through grief and miscarriages and hitting my own mortality more than once and then both parents gone as brackets around a global pandemic. And I am still here looking at my beautiful family knowing it is only a fragment and that they each of them is hurting and fighting their own battles and a chunk of that - what ever they say is my fault weather through my fault be it genetics or circumstance.

My heart isn't just broken, it is pulversized - it is raw meat - it is a bloody pulp that I am not sure can be revived - I want my babies and I want my parents - but I have Al and the kids except I feel I am loosing them - this is only right for the kids they are growing up and I can not cling to them because the ones in-between are missing. I feel that I sacrificed my last bastion of motherhood to look after my Mum and yes I resent that and I know people think I am selfish for even considering more babies. I am just a tattered remnant now - I look at all the things I am supposed to enjoy and I just think "but do I really?" I am doing better with this but still not sure it is not obligation.

Alaric says they just want me to be happy but - what is happiness - all I ever wanted was to feel safe and secure - to not be in pain. Apparently that is not happiness and I have struggled with pain my whole life and I'm no longer sure that I will feel alive without it. What would that be like? No pain? I am sure there must have been times of no pain but my memories are riddled with it. Sitting on the wall waiting for a bus at 17 my back burning, standing doing my shifts at the Union at 21 my pelvis and hip aching, 11 year old me in a Guide game crying because to sit like that made my knees feel like they were being crushed. And I didn't know others did not also feel this. And just to ease it often robs me of thinking capacity as the pain killers space you out but then so does lack of proper sleep.

And I think of my mum and the pain she endured and I get so angry - incandescent and this rage... it scares Al - it scares them and they need me and I can't be there for them and I know this has broken them. There has been so much lose for both of us - during all this Al also lost friends and family members and had to make decisions they never expected to have to make. They said they are sick of me almost dying and they are sick of death - it is eating our lives this bereavement merry go round we have been living. 5 years now - 5 yrs of lose and medical dramas and it sticks in our throats and it is scouring our bones and we are tired. The year before the pandemic Al ran out of leave days to take for funerals - last year they had to have months of compassionate leave to help me look after my mother and it was harrowing - the thing we all found the worst was when she was calling for her mother and reaching her arms up to us like a toddler but it came and went and the week before they discharged her I was hopeful even when they took her back in after the disaster of a discharge - I still thought... it doesn't really matter... things either don't matter or the smallest of things seems so frantically important.

The sunsets have been amazing lately - because of storms and dust and climate change - things that were once rare - specific light and cloud formations are now a regular thing and they are beautiful and breath taking but they are born of turbulence. I vibrate now - it is weird and part of the Graves Disease from my understanding - my whole self just kind of hums and the dreams are bright and real and in those dream I am retrieving my parents from weird distorted gardens or trying to get out of zombie filled shopping centres whilst trying to retrieve children I have left behind and sometimes Mum is already dead and sometimes they sit up after embalming and they have trouble thinking and I see the photos of her from when she was young and I think of the person she never got to be - the person she actually was beneath the damage and that hurts most of all - because she poured those regrets on us in the last year - she told us about her loves and wants and wishes.

I wonder if the vibrations are the after shocks of turbulence - like there has been an Earthquake and the sea floor is still cascading as minute shifts in currents prod the now unstable surface and everything slips - crashing down into the abyssal plain smothering fledgling life that dared to try and exist on the edge. This is my life now - it is a new stage - a phase as yet unseen but I have no idea where I am going and I am not sure I am even steering. Our electric car broke down on Friday and I had to steer as it was pushed round the corner but really I was just making things easier for those pushing I was following directions and I don't even think it really mattered if I'd done it completely wrong. I am on that hummocky bit of the river after the full force of the rapids - but I don't know where the river leads so there could well be more to come or a water fall or slow meandering rivers or back waters that snag and down you.

All I know is the more you love the more pain there is to feel - there is no way around that - no way at all. So all there is is loss really. It grinds you away. Sometimes I think I am just echos of all those I have loved that I still love and that fill my heart and mind - they are there but where am I? What am I? How can I ever be? I have always felt I only really come into being around others - that doesn't mean I don't want to go off and have time alone but there are still those people there for when I return - I am still tethered - but now... I feel like a none person. I had to spend the weekend on my own and I realised I am 41 and no one can remember me being on my own in a building at night - not once - room yes building no... there has nearly always been room mates for a start from siblings to cousins to my nans to my mother to other students to Alaric to the kids to sleep overs with friends - so I went to invite people round for a sleep over and realised it sounded completely in appropriate and so I didn't send the invites and then I had to face being alone. My friend visited for the afternoon after I cracked and asked what are you supposed to do on your own? No really I don't get it and I didn't like it if I hadn't had the animals I am not sure what I would have actually done.

All of this I know is part of the grief but I am also really not sure who the hell I am and I long LONG to run and climb and jump and I know that is realistically unlikely at best - I watch my friends caving videos and I can't even manage weeding my own garden at the mo - for the first year since university I am not growing veg or herbs - I have planted nothing just scattered some flower seeds and bought already growing plants to pot up to try and make things look ok - but they don't because actual work needs to be done and sometimes I can't even get myself into a vehicle without help.

I am so tired but thrumming with energy at the same time - oh I want to go to the skate park and fail at doing stunts - I want to join the armoured combat group - I want to canoe in the canal.

Instead I plod along with crutch or sometimes crutches and slowly amass the kilometres to add to challenged I've paid to get medals from - I am walking 100 Km for a medal I've personalised for mum but it isn't even a proper charity walk or anything - its just a shiny medal I thought would fit. People like telling me what to do - I am struggling to even want to listen to them - I would say I am running of regardless except I am not but maybe this is the way to go - maybe the river knows - I was after all born of the Muddy Waters, I have the Estuary in my bones - I have found a part of the Severn to sit and be by whilst Mary is in dance and a robin has befriended me and tries to steel my chips - hovering in front of my face and I love the birds there - I see herons and swallows and house martins (well by the houses I do), and I get to see the mud banks and think about how I used to go down on the Thames foreshore with my dad and find bits of broken doll and weird green crabs that didn't belong and needed the warm water from one of the factories to live. I remember the big chunks of chalcopyrite they put in when the docks had gone and I'd planted trees there with politicians helping with the digging and how important I felt planting those trees were even though I had a huge chest infection and shouldn't have been doing anything - I remember my mums students doing an art project on the rivers and waters ways and how it was tied into those trees and then whilst sorting things for the funeral me and and my brother went to parts of it and my friend who works on it told me about the new larger project that takes into account the fens and marshlands and I just remembered my dad taking me to see the wolves in there large enclosure and how the one I liked to watch with their piercing eyes would trot over and look at me though the fencing and follow me as best it could and the walks learning about all the uses for nettles and that I don't think I've taught my kids to identify the trees well enough and that I loved the marsh with its hidden Iron Age footings and the little owl with apparent ears. And I miss all of this.

After Dad died I felt he was some how Old Father Thames - that was how I saw him in my dreams - but I live far from my rivers except it turns out there is a tunnel connecting the Thames and Severn so I felt/feel that that makes them one thing - but kind of not as well - I liked that connection and I longed for the sea and estuary during lock down and I love walking by the rivers and seeing and photographing their multitudes of life - I feel I am part of them - I am the will o whisp that is the marsh light and I am the girl who played in the river and went to the river ever day and who went to get their dad to rescue the kids who did not know or understand the river or when you should not go in. I first found rocks on our river bend and I dream of my river realm regularly - I showed Mary water plants so that they could know where not to tread and at my place along the Severn we were told the tide was coming in - that the bore was coming and so we waited and Alaric got bored and wondered off but me and Mary watched and Mary got excited as the mud banks were swallowed and I realised watching the calm shallows become chopping muddy hills of water - that this brackish world trapped and interlinking two worlds - the sea and the river - this is my world - with salt marsh to boggy patches of unknown depth and the wide wetlands with hill struck island and I feel the boats calling me and the reeds waving and recall why I love Wind in the Willows so so much though I probably am Mole.

The rivers gave me pebbles and pets that were wild from foxes to badgers to ducks to my new robin friend - and I am those cross currents and calm water turned to power churn - I can go against the flow or with - I can choose - but there is life and danger in this.

Recently as I walked down to the river to earn this gold heart with my mums name on it that is probably spelt wrong because I made it but thats ok because I always spelt it wrong I thought about Sabrina or Hefren as my dad called her and of how she is the river Severn and I can help but here the eulogy Alaric created from my mothers own words about the boats and the adventures here and dad had had and hoped to have again - the rivers connected but separate are them and I miss donning a wetsuit and swimming in brackish waters that tend to salt and going in little boats up the river. My brother is into canoeing at the moment and has my granddads boats - I wonder if he too feels this connection with the rivers and I know that sounds stupid but I have always been called to water as to rock and fire.

Maybe spinning around trusting the currents is the way to go and maybe backwaters and rapids all have their place though I would like very much to have my family whole and be picnicking on a sand bank as we used to do.

The Orphans Club (by sarah)

My mum died in the early hours of May the 1st she hadn't really woken up for days and had mostly been in hospital since January. The last 7 months have been a strange kind of hell where there were no good decisions because all the options were bad. People kept telling me things would get better and I tried to explain that they couldn't because what ever I did there really was only ever going to be one out come. They did not understand.

In this time I lost myself and was just a conduit of care and rage - I don't argue, I am non confrontational and yet I have been arguing with everyone from drs to friends to family to my mother and even myself over what is best and what is to be done. We spent a lot of money getting a room and ensuite put in - a job that had been postponed due to covid - it was for my mum and we moved it downstairs and it was built as quickly as it could be. She spent one night in it - she liked it and I think it was important for her to see it and to see how much effort we had put in.

Stuck in a wilderness of ethics and unknowns it has been unbearable with visiting restrictions that changed on a sometimes hourly bases and days eaten up by sitting on the phone just waiting with the incessant elevator music droning away. Then there were the times the hospital lost her and didn't even know where she was in the hospital and the turning up when we were booked in to be turned away and other times when we were told we could not visit and then had mum on the phone in tears because we weren't there and the nurse saying of course we were allowed to visit...

Then to the arguments about treatment and capacity and what care was actually needed with me in the middle of a three way argument and having to make decisions I am not sure I was qualified to make whilst taking into account the medical information and my mothers wishes plus the added bonus of a respect form which I never saw that apparently contravened what she had always said. In the end all of that was mute as she'd reached the stage she'd always said she didn't want to be kept alive in and also the treatments had all stopped working.

She'd opted not to have invasive treatment about 2 months ago when cancer was found in her ovaries ie no operations - I was supposed to be phoned by the cancer drs and palliative care team but I didn't know this and it didn't happen - this was part of the last and most ridiculous and heart breaking discharge from the hospital. The genetics dr had spoken to me so I knew that the cancer might be hereditary and mum has 5 granddaughters not to mention sisters etc.. and of course me.

Her discharge was not explained and the ambulance crew had to explain it - she was to no longer go back to hospital but there was no respect for and even if there was we had not been given the correct care package to look after her - the care package that we had been waiting and waiting for and the fiasco with equipment and the arguments with hospital Occupational Therapists verses the Complex Care at home OTs and so on. It was a frigging living nightmare and we all paid a heavy price for it including the kids.

They wanted to take her straight back in but she was understandably desperate not to go so I said I couldn't send her back but the next day she was so ill she was asking to go back in - there is a lot more why she needed to go back in but I don't yet have the strength to share. She told me I had to tell what it was like and that I had to tell the hospital off, district nurses, carers, OT, stroke nurse and one lot of ambulance all agree that I do indeed need to tell the hospital off about this and indeed I have been telling them off in various ways and places through out this whole saga and that makes me feel awful as well.

Mum was grabbing at feathers we could not see as infection raged in her system causing an on and off delirium, she was asking for my great aunt and calling out for her mum. This was the state she'd been in in January so I still had some hope she'd be coming home again and I told her we'd make flower crowns for the Jubilee - mum would tell just about anyone who would listen that she'd been a flower girl for the Queens coronation when she was little and that later she had even been to a garden party or three and met the queen.

Feathers were so important to mum with a belief that they belonged either to the wings of loved ones or their guardian angles and when those normally white feathers float down our loved ones are near. We have pigeons nesting in our chimney and often feathers would drift into the living room - before the hospital Mum would always state that it was actually my dad or her mum checking in on us.

She asked for prays or a candle lit or song sung for her from those who are religious or spiritual - she believed it was all people finding God in their own way. She asked for healing - not for a miracle cure but to ease the passing. We have her favourite foods we rushed out and bought when they said she was being discharged and we have presents that she never got to see. Yesterday the kids automatically tried to get her a present to take to the hospital - they mostly got lost in ward moves and sometimes there were colouring books we hadn't bought which she asked us to give to the kids.

My friend phoned me up to welcome me to the orphans club - between us we've lost a parent every year in basically the first quarter for the past 4 yrs, plus the death toll of friends and so has been high. They joked that we needed to rescind our memberships and really if only that could be so. I am not going to pretend that death is this magical instance of nature that we need to roll with because it is crap and there is a hell of a lot of preventable death - but equally the way our society hides it away as a thing to not be spoken about, to be hidden to be mourned in the private - that is also alien to me and feels so very wrong. Dad would have wondered what impact this sort of thing would have on life extension tech and upload stuff, mum would have rolled her eyes at him.

With the jubilee around the corner I find at the time I resent the Queens longevity - not because she has it but because I am sure a large chunk of it comes from having health care quickly for the minor things so they never get to be the big things and also the getting of treatments and to be honest just good nutrition that people like my mum were not afforded in their youth. It isn't the everything but I am pretty damn sure it has a huge impact. Mum loved the Queen and Royal weddings her favourite actually being Megan's - we watched it together and there were flags and things in Gloucester.

Its weird for me because since dad died everything has centred on mum and her care so I am a little lost at the moment - what am I supposed to do - at the moment there are still phone calls and paper works but nothing like what it has been. But what do I do now? Who do I fight for or with? Everyone keeps telling me to focus on me and getting well - I became quiet poorly due to covid and trying to look after mum - I was already sick - I'd never recovered from the miscarriages and that plus dad going and covid and other auto immune things meant I got Graves Disease along with bought of anaemia and the worst pain and fatigue I've had in years. Chest pains, problems breathing and the sinking realisation that the help I needed to look after mum just was not there.

She had a stroke in October and they sent her home without the equipment in place including a downstairs bed our OT was saying don't let them discharge her but the hospital did not listen and it was horrendous and resulted in mums foot being injured as she predictably fell off of the make shift bed. The fight for equipment and the keep dropping off of the system was soul destroying and everyone says everything is everyone else problem - you literally get sent round in phone call circles bounced between equipment, district nurses, GP, ambulance, social services etc... round and round we go with computer outages and equipment stuck on ships in transit and waits for ambulances which beggered belief - 17 hrs I think was our longest for a high priority call. Some people where waiting 70+ hrs and though this is being reported in the news - the wait times mentioned are nothing compared to what we actually experienced - including for the stroke - the obvious stroke.

This has been a perfect storm of everything being wrong - including us as I tried to look after mum my hands and mobility got worse and worse she ended up with bed sores and infections and I missed how ill she was because I thought she was grumpy about me watching Marvel for my birthday instead of what she wanted to watch. She drove us made with Death in Paradise and I thought I'd never get the opening theme out of my head - but I had hoped that this year it would be playing on her TV in her new room and its absence hurts because we tried so hard but it was beyond us and I can't even really pin point why.

But not just that it affected the kids and we ended up in meetings with both schools as me and Alaric who's firm had given him a lot of compassionate leave to help me, were consumed with trying to care for mum post stroke - they said she was pretty much independent and were even saying she didn't need the help we'd been promised in September pre stroke but she needed help with everything - initially she couldn't sit herself up or feed herself - they said this was our fault for taking so long to pick her up from the hospital (but that is another story and involves promised hospital transport they then said they would never have promised and security guards having to help us get mum in the care).

The schools were fab, especially as both kids own health has taken a bit of a battering with autoimmune system problems being switched on and their own adjustments to that - but we were being bad parents with Jean ending up basically looking after Mary whilst we tried to sort my mum out. And that was before it got really bad - I ended up with social services offering me a care package as I got so poorly I could no longer dress myself but I kept pointing out what we needed was care for mum - why was it being so hard to get?

They dropped her off the list twice and I had to argue for reassessments - it went from 2 careers 4 times a day to 1 carer twice a day to none then back up to twice a day, to me agree to 1 once a day just to get her out of the hospital. When they finally did the assessment having been told 1 carer twice a day it was ruled completely inadequate and a failed discharge for so so many reasons like the fact we did not have the right equipment to look after her.

It is all heart breaking and she spent basically months in hospital crying to come home and then it was a complete disaster - and of course the people I would have moaned about all this too, would have been my mum and dad - but they either were no longer there or it was for them and I know I had them for far longer than some of my friend had their parents for and my granddad died when my dad was a teenager and I know it is nothing like that but still all I can think at the moment is - Damn The Orphans Club.