Cranham Feast 2013 (by sarah)

I forgot my camera on the Saturday - boo hiss - Alaric I believe took some photos on his phone but I do not yet have them to pop on the blog!

Saturday we arrived and I set up face painting which I was doing for the whole afternoon inbetween talking to friends and the like 🙂 Jeany took part in the Boundary Race but was sad she came last - the fact that she was talked into doing the race by the first aider who was dealing with her ouchy chest (she tried to summersault on the bouncy castle and had a collision) didn't seem to mean anything to her - we pointed out she'd raced whilst injured and after Christmas Daddy should be able to start running again so they can train for next year!

Sunday we got all the kids sports stuff ready - softy play kit, rackets, balls of various sizes, skipping ropes, hula hoops and more and drove to the cricket pitch were I felt bad about having to get cricket peeps to move cars off of were the kids sports and games were going to be. Then we walked to the church for the flower festival and musical interlude,

Mary sat down expectantly on the seats awaiting the music but got bored about half way through and was grumpy that mummy and daddy were on different rows and insisted on going from one to the other until Al gave up and took the girls outside to run around. Music was lovely with flute, organ, oboe? and sax, I bumped into a friend I had not seen for ages but as she was the flutist it was a quick hi!

Scarecrows featured heavily in the flower festival this year - I wish I'd found a few more to photograph but it is a busy weekend for us 🙂

The Banner and belt (which has been missing for a few decades!) were waiting for Al at the Church entrance, And the flowers inside were amazing - I didn't photograph as much as I wanted as chatting meant I ran out time - bad Sarah.

Alaric has carried the Feast Banner for the last few years - this year we had three cubs (one of which was Jean) and they had a procession from the church to the field were the service was being held and then a later one up to the cricket field.

I was a bit worried as to fit all the sports stuff in we had taken our car crate out of the boot and so we had no rug to sit upon during the service but a nice man (not sure who he was) had put out a series of blankets so we sat on the most purple one - as in me and Mary as Al and Jean had to be up with the banner. Mary was taking it all soooo seriously - NOT!

It was an animal service so of course there were animals! Everywhere! And me and Mary got loving kisses off of a black doggie and Mary wouldn't believe me that they were DONKEYS and not horses. Then she loudly named all the animals and ones that weren't there but she thought should have been and then she pretended to be a cat. I don't think anyone noticed in all the baaring and barking! I hope no one noticed she'd broken my top too and announced loudly that Mummy has boobies,

There was a silver band and we sang the Cranham Feast hymn for the second time which was nice. There was someone important taking the service but I'm really lame and knowing what's what with sorts of thing sand only remember that the lovely sheep were his.

Mary found the village sheep and as she had done the day before attempted to climb into the pen with them - she almost got over the top on Saturday.

We then amassed and began to parade up the hill to the cricket ground - Al's cousins and uncle tried to help me with Mary up the hill but she was being a moo!

We then put games out for the kids to play so they weren't noisy during the handbell ringing.

I really like listening to handbells - I used to do handbells in junior school - not that I was any good!

The animals processed as well and spent the afternoon at the Cricket Club were cricket was a foot. This was interesting whilst trying to run the children's sports!

It was actually quite funny 🙂

And lastly we finished with hula hooping and football.

And that's that for another year!

Running to Stand Still (by sarah)

So for the past 4 months I have basically not used my walking stick, I have been walking and lifting small amounts of stuff and generally getting on with things. Today I managed to sit on a rug on the ground for the animal service at the Cranham Feast and even jumped up to take some photos of donkeys and sheep (as you do), but it began to hurt so I didn't stand up for the songs but sat with Mary on the rug (Jean and Al were holding banners and flags and what not).

When I say hurt - it was nothing but a minor ache, I then walked up to the cricket field in the procession and even carried the baby for bits of it but that was beginning to be painful so I was slow but not as slow as last year and I felt proud I was walking much much much better even than last year when I was just happy to have walked it. But everyone was slowly passing me and I felt embarrassed(and sad) that I had to let my toddler cry instead of carrying her. People did offer to carry her but she refused to go to anyone other than me.

I made it to the cricket field and sat - for not very long - then I started setting up the childrens sports and I was happy, happy and exhilerated that I was managing to sort of run the routes and show the kids how to skip and so on. And I thought wow! What an improvement and then I looked at the cricketers and I thought - you know I've worked so hard to be able to do this, to be get the mobility back and to try and keep some level of fitness whilst it and the aneamia were bad. So much effort fighting the chronic fatigue and pain which will always be there and being careful about foods and the like, so much physio and effort. It's like my own mini olympic training... to be not quiet as fit as a normal person.

So though I feel proud and happy about what I have achieved and the improvements, I feel sad that it takes just so much energy and effort and to a certain extent there is always going to be something I am battling even on brilliant days - this is becoming less of an issue as I get older actually as my peers are increasingly coming up against illnesses and the like and I at least I have had a decade to adjust were as for them it is new. I also find myself feeling angry. I think, 'you know all that effort and people look at me and think lazy fat cow' and I am angry about that, I am jealous as well - the darkest moment with that was during Jean's pregnancy when I had been let out of the hospital to go to the pictures with Al, he was pushing my wheel chair and everything hurt. I had followed all the health advice and done everything right and there outside a pub we went past was a woman as pregnant as me in tottering heels, fag in one hand and bottle of something in the other talking about going clubbing. I can't express the hate I felt in that moment.

I've probably said most of this before but it just sort of hit home to me tonight as we watched AVATAR for the first time and the guy having to pull his legs about reminded me of the fact that there had been phases of my life when I've had to do that and bizarly that it is sometimes easier when you are in a wheelchair or on crutches as people can see you need help. When you are getting better (or worse) people see an apparently healthy young person and tutt about them not giving up a train seat etc...

As I tell Jean - you can never truly know how another is feeling, you do not know how hard or easy things are for them, you should not judge them as you can not judge them, you can not know.

Today Al was also worried that I was doing the main lifting and shifting for the sports stuff we did with the kids, I got it all out of the shed and lumped it across from the car etc but I was capable and he was doing the procession holding the banner and I didn't want him pushed to far with the way his legs have been and the antibiotics etc...

He was pleased to see I didn't flag as much as he was expecting - the odd sit down here and there was enough and I only started limping towards the end and it was a hard long day for me.

It feels to me like I am Running to Stand Still and I haven't even really managed to stand still, I have slipped backwards - I write adventure stories with caves and mountains and things in, I remember climbing, I take Jean to the climbing wall and look at the pictures of people climbing - I see moo cow fluffy chalk bags and I get excited and then I feel hollow as I explain to Jean why I am not buying it.

I think I also push myself for events as I can push myself through them and then take time to recover and it makes the more painful times tolerable by having something to look forward too. I have had a decade or so to adapt to my situation.

I got a thing through from college - the rearranged meeting about disabilities and stuff (I missed the first one due to Al's legs) - part of me wants to go 'no I'm fine now honest I don't need help.' This would be a stupid thing to do but it makes me feel so pathetic.

I know though that this is standard for those with long term / chronic conditions and on going health issues - hey I even stole the title of this blog post from a friends audio play about ME /Chronic Fatigue. The money from it's sales is going into research into the condition which can only be good - it wouldn't solve the separated pelvis but it would be something 🙂

Mainly though I am happy today - I walked and ran and tried to show people how to hula though I was not able to do much other than head and hand hula and I took video of Al trying to do foot hula and the kids loved everything and it was a nice day and I was pretty much a normal person - no stick or crutches nor lifts needed.

More Purple in the Room! (by sarah)

In an effort to stop post going missing and to stop the chaos of the shoes (our shoe rack broke around Christmas time) I decided that the lovely metallic purple and white table could go just inside the door and a purple folding crate I bought on special offer during the move, would be the perfect solution - seems to be working so far.

Soup (by sarah)

I've had a bit of a rough day with nappy leaks and kittens chucking up and a Jeany who is still not quiet eating right etc... so we decided to do an easy dinner and I was getting the tins of soup down from the cupboard when Mary ecstatically started asking for the soup and pointing - specifically the tomato soup.

She finished the first bowl and asked for more, then finished that - I took a vid of me giving her her third bowl! She had a fourth as well!

Vomo-matic and Splotchy (by sarah)

Alaric is officially a medical mystery with his splotchy legs as the three main contenders are all things you wouldn't expect him to still be walking around with/not have a sky high temperature. Also they don't quiet look like any of them but sort of like all of them. So it could be Lymes disease, cellulitis or meningitus (or blood poisoning). They took bloods and his GP has prescribed antibiotics. The blotches are already reducing but the skin over the affected areas is all shinny and a bit well sort of dead looking if I'm honest :/

But it does seem to be responding well to treatment.

The other two things it could be are spider and snake bites though that has not been suggested by the medical people he's seem but by a wider group of 'services' friends ie police, nurses and the like who have had to deal with such things. What ever it is the treatments seem to all be antibiotics.

Also because this didn't make our lives interesting enough....

Yesterday Jeany woke up and said she felt sick but then perked up and ate breakfast and this is often the case with her in the mornings anyway. She went on an outing with friends were she proceeded to spew up all over the cafe and her friends mum's foot - ewww!

It was very hot and heavy yesterday with the impending thunder storm and she seemed fine after cooling down with head bands and what not. So we had dinner and she went to bed and covered herself up in her dovet! And so at about midnight there was the splatty sounds followed by a pathetic 'Mummy!'

So I ended up cleaning sick out of hair, jet washing the road rug and making her stand outside in the cool air outside whilst daddy cleaned the carpet in the girls room and constructed a floor bed with only a sheet to put over her. We also added a cool foot bath and a wet flannel into the mix - not all at once as you don't want to shock the system cold.

However though she seems alot better it may not be heat exhaustion and so if she throws up again today I can't take her with me to my workshops at the weekend for health and safety reasons 🙁 ie don't spread the plague!

So fun and games here! Plus I am sort of running on no sleep now.